A Peer Researcher’s Experience Representing Adolescent Health at the International AIDS Society Conference

Ashley Chory, MPH, and Dennis Munyoro

The International AIDS Society (IAS) focuses on advancing HIV care and helping those living with or affected by HIV. The 12th biennial IAS Conference on HIV Science presented critical advances in basic, clinical, and operational HIV research that move science into policy and practice. The mission of the conference is centered around supporting polices of stigma reduction and to use evidence based data to inform attitudes, decisions and actions.

Dennis Munyoro is a peer researcher at the MTRH-Rafiki Centre for Excellence in Adolescent Health at AMPATH who was awarded a scholarship opportunity to attend the IAS conference in Brisbane, Australia. His work on engaging children and adolescents living with HIV and serving as a co-author on publications concerning adolescent stigma and ethics made him the perfect candidate to attend this conference. He became a peer navigator in 2016, and in 2021 transitioned to being a peer researcher after he aged out of the program. He discussed his experience at the conference with Ashley Chory, MPH, Global Youth Health Senior Program Manager, and Sakshi Sawarkar, MPH, Associate Researcher.

If you could describe your experience at the IAS conference in one word what would it be and why?

Amazing! Attending the conference opened my mind to new ideas in the field of HIV adolescent care. I was able to understand what the needs of adolescents are in different parts of the world compared to my country (Kenya) and what innovations could work best in my setting. For example, the use of technology to deliver information or linkage to care for people living with HIV.

What did you find to be the conference’s highlight?

The highlight of conference for me was a session titled “How to write a research manuscript: Publish or perish.” Since my interest is more focused on writing and publishing, this session was an eye opener for me as a young person venturing into the research world with the aim of finding solutions to gaps in care and treatment of HIV, especially for adolescents and young adults. Even though as young people we do so much in this area, we do not publish our work or findings.

What was your main takeaway from the conference?

I was very interested in the research aspect of the conference, particularly how to write a good abstract and proposal. This has been a significant help in advancing my career since it has provided me with valuable advice on how to draft strong proposals.

Did you meet other researchers who also work in the field of adolescents living with HIV? If so, could you share any insight into their findings that you found most fascinating? Were there any concepts you could apply into your own research?

Getting the story and telling it right is another area that fascinated me while interacting with the other researchers in the conference. There are a lot of untold stories that could give valuable lessons in terms of success stories or gaps, and if told right it could inform others on how to better implement programs in different dynamics and cultures. There was a concept of embracing and integration of eHealth in the care of HIV. I am more focused on adolescents and young adults, and the introduction and adoption of eHealth and social media platforms would be beneficial to this population since a significant number of them live in the digital world. If they get their information on the internet, it would be the right place to disseminate information to this population.

What was it like connecting with others who are just as passionate about helping adolescents living with HIV?

Attending the conference provided me with a unique opportunity to interact with various young people from different countries and cultures just as passionate as I am in the fight against HIV. Exchanging information with others in this field gave me a good insight on trying out different approaches in delivering care, especially exploring the use of tele-medicine and social media to demystify misconceptions in the community, which will have a great impact in stigma reduction.

Were there any presentations that helped you expand your knowledge about HIV outside of the context of adolescents?

There was a presentation on opportunistic infections being underdiagnosed until it is too late, for instance tuberculosis. The introduction of regular screening in the care unit would change this which will help the client get treatment early enough to contain the infection before it’s too late.

Was there a specific poster, abstract, or study that had a significant impact on you?

Yes, there were a lot of interesting posters in the conference that were intriguing. But the one I found most interesting was a study conducted in the southern part of Africa, where the researchers set up safe-like centers to dispense medications for potentially life-threatening illnesses, such as AIDS. When a client registers, they are notified of the passcode for the safe box their medication is in, and it can be picked up any time. The purpose of adding these medications to this program was to avoid stigmatization in the community. I believe with the right approach in my community, this program would be of value, especially to stable adolescents attending school while living with HIV.

What kind of opportunities did you get from attending this conference?

I had the opportunity to meet with the International Conference on AIDS and Sexually Transmitted Infections in Africa (ICASA) organizers where I was able to secure an online scholarship to attend the conference in Zimbabwe in December 2023. Participating in the conference provided me with an opportunity to network with young people along with various organizations at the conference.

What was your favorite part of your trip outside of the conference?

I really enjoyed my interactions with different organizations in the expo booths. It was refreshing getting to know the different technologies organizations are using to provide better access to HIV management and care. Outside the conference, I enjoyed the environment in Brisbane, the people, food, and culture. The city is one of the best I have ever visited and it was a great experience overall.

Ashley Chory, MPH, is Senior Program Manager, Global Adolescent Health for the Kenya partnership at the Arnhold Institute for Global Health and for the Department of Global Health and Health System Design.

Sakshi Sawarkar, MPH, is an Associate Researcher, Arnhold Institute for Global Health and Department of Global Health and Health System Design

What Is the Impact of Doula Care?

Doulas providing information about doula care at a National Council of Negro Women, Inc. (NCNW) Power of Pregnancy Event. Top row: Christine, left, and Sora. Bottom row, from left: Harriet, Denise, and Donna.

Have you heard about doulas? Wondering who doulas are and what they do?

Doulas are trained coaches who provide non-judgmental, educational, emotional, and physical support during pregnancy, labor and birth, and the postpartum period.

Traditional doulas can provide strategies for self-care during pregnancy and for post-natal healing. They can provide hands-on pain-management techniques (such as breathing, positioning, massage) during birth, and they can assist their clients with communicating their questions, preferences, and values to their health care team. They also assist with strategies for newborn sleeping, breastfeeding, and overall assistance with transitions into parenthood.

Community-based doulas go even further by providing support beyond pregnancy and postpartum care. They connect their clients with additional resources such as food, clothing, baby supplies, mental health services, legal and immigration services, and anything else they may need. These doulas are from the communities they serve. They speak the same languages, and share backgrounds with the clients they serve; this makes it easier for individuals to connect with and access culturally appropriate and culturally competent care.

“If a doula were a drug, it would be unethical not to use it.” – John Kennell, MD, noted pediatrician and researcher at Case Western Reserve University in Cleveland known for support of doulas

From 2011 to 2018, there has been an alarming rate of pregnancy-related death, which is eight times higher for Black women than white women, and the rate for Hispanic and Asian women is twice that for white women. Additionally, COVID-19 has worsened this crisis, with minority pregnant women becoming infected at a higher rate than white pregnant women and having higher rates of death from COVID-19.

Doula care can help mitigate these health inequalities. Research has shown that having a doula can improve a person’s birthing experience, and increase their ability to initiate and continue breastfeeding. Additionally, doula care can contribute to shortening the length of labor, reduce the need for epidural and analgesics, decrease the incidence of cesarean sections, and reduce the risk of postpartum depression.

The Arnhold Institute for Global Health NYC Partnership is excited to share its efforts to increase doula care through “Helping Promote Birth Equity through Community-Based Doula Care” or HoPE, which is a program that has been developed in partnership between Mount Sinai the Icahn School of Medicine at Mount Sinai, NYC Health + Hospitals, NYC Health, Ancient Song Doula Services, and Caribbean Women’s Health Association.

The HoPE program provides community-based doula care and support free of cost, to anyone who is pregnant, giving birth, or gave birth recently at either Elmhurst Hospital or Queens Hospital. HoPE is made possible by our generous funders which include Robin Hood and the New York Health Foundation.

You may have seen some of our HoPE doulas in the waiting rooms at Elmhurst or Queens hospital, at community baby showers, resources fairs, and other local events focused on maternal health, health education, and health equity.

On average HoPE doulas provide four to eight prenatal visits, are present during the entire duration of labor, and provide 8-18 postpartum visits up to one year after birth. HoPE doulas are from the Queens community and speak many languages including Spanish, Bangla, Urdu, Punjabi, Hindi, Nepali, Haitian Creole, and Twi. HoPE doulas are advocates for the patients they serve. To better serve our Queens community, the HoPE program is working towards providing further specialized doula care and support to birthing persons experiencing housing insecurity or homelessness as well as justice-involvement or incarceration. Our work with homeless individuals and incarcerated birthing people is made possible by our funder, The Leona M. & Harry B. Helmsley Charitable Trust.

If you are giving birth at Elmhurst Hospital or Queens Hospital and are interested in working with a HoPE doula, request doula services by speaking with your health care team at your next visit or by calling 646-619-6721 and requesting a referral to the HoPE Doula Program.

Kanwal Haq, MS, is the Program Manager for the New York City Partnership at the Arnhold Institute for Global Health and the Department of Global Health and Health System Design at the Icahn School of Medicine at Mount Sinai.

Mount Sinai Formalizes and Takes Leadership of the AMPATH Adolescent Working Group

From left to right, Florence Jaguga, Ashley Chory, Ken, Vallary, Josephine Aluoch, and Lonnie Embleton representing the Adolescent Health Initiative at the AMPATH Kenya Global Gathering.

Since 2015, Mount Sinai, through the Arnhold Institute for Global Health, has participated in the Academic Model Providing Access to Healthcare (AMPATH) Consortium, a collaboration between Moi Teaching and Referral Hospital and Moi University in Eldoret, Kenya, and a number of North American academic medical centers.

In 2019, Mount Sinai became the lead Institution for the AMPATH Adolescent Health Initiative, which is housed at the Rafiki Centre for Excellence in Adolescent Health. In this role, Mount Sinai is responsible for the strategic development and systems strengthening of the care, research, education and community advocacy programs focused on adolescents.

Lonnie Embleton, PhD, MPH

Starting with the Rafiki Centre for Excellence, efforts are ongoing to expand the existing infrastructure to provide comprehensive and integrated care to all adolescents free-of-charge, regardless of HIV, housing status, or other characteristics. Comprehensive and integrated youth-friendly services encompasses providing holistic care across clinical specialties, including primary care, infectious disease, sexual and reproductive health, nutrition, and psychiatry, among others. Through the establishment of the framework of these goals, Mount Sinai will advocate towards improving the lives of adolescents in Kenya.

Working groups at AMPATH have been a vital and unique resource for research collaboration and activity since the program’s inception. These multi-disciplinary-focused groups were created to provide a bridge between clinical care and research, and to foster collaboration, particularly between researchers across the AMPATH consortium.

Florence Jaguga, MBChB, MMed

In July 2023, Mount Sinai formally took leadership of and formalized the AMPATH Adolescent Health Working Group, which includes representation from clinicians, researchers, public health and policy experts, and youth across the partnerships. The groups’ leadership follows AMPATH’s counterpart model, and is chaired by Lonnie Embleton, PhD, MPH, Assistant Professor, and Florence Jaguga, MBChB, MMed, with Josephine Aluoch and Ashley Chory serving as secretaries. The group also includes peer-elected youth leaders, Vallary and Ken, who are responsible for providing feedback on program and research proposals, as well as other youth-specific contributions to the working group.

By centering on AMPATH’s tripartite mission of care, education, and research, Mount Sinai has shaped the working group’s strategic domains around similar principles. The overarching goal of the adolescent health initiative is to ensure healthy lives and promote well-being for all adolescents in Kenya centered on delivering high-quality and standardized adolescent youth-friendly services.

The working groups’ purpose is to provide a forum for discussion of adolescent health programs and to identify gaps in existing resources; discussions span the complex topics and needs of adolescents globally. Additionally, a comprehensive research program, the establishment of health professional training, and the creation of long-term funding options can all contribute to enhancing adolescent health. Our aim is to develop, implement, and evaluate a robust set of standards, policies, educational, research, and fundraising activities over 10 years.

Sakshi Sawarkar, MPH is an Associate Researcher, Arnhold Institute for Global Health and Department of Global Health and Health System Design

 

 

 Ashley Chory, MPH, is Senior Program Manager, Global Adolescent Health for the Kenya partnership at the Arnhold Institute for Global Health and for the Department of Global Health and Health System Design.

 

Meet Sangina Ranjit Malla, MD, and Bhawana Regmi, MSc, Our Newest Trainees From Nepal

Sangina Ranjit Malla, MD, left, and Bhawana Regmi, MSc

Sangina Ranjit Malla, MD, and Bhawana Regmi, MSc, trained and visited Mount Sinai through the Arnhold Institute for Global Health’s global health education program in September 2023 for one month.

Dr. Ranjit is an Associate Professor, Department of Anesthesiology and Critical Care, at Dhulikhel Hospital and Kathmandu University School of Medical Sciences in Nepal. Ms. Bhawana is a lecturer for the Department of Medical Surgical Nursing and Nurse Manager, Adult Intensive Care Unit and Surgical Intensive Care Unit, at Dhulikhel Hospital in Nepal. They work closely together in Nepal and are both very passionate about global health.

In this Q&A, they discuss what they hope to learn from their visit to Mount Sinai.

Can you both please tell us a little bit about yourself and your work?

Dr. Malla: I am an anesthesiologist, currently working in the operating room as well as the intensive care unit. I joined Dhulikhel Hospital in 2003 and since then, I am committed to the principle and objective of my Institute: “quality health care for the poor.” I completed my anesthesiology residency in 2008 in Nepal and, over the years, I have developed a special interest in critical care, cardiac anesthesia, trauma, and resuscitation. My team and I provide perioperative care for specialized surgeries like neurosurgery, gastrointestinal surgery, cardiothoracic and vascular surgery, trauma, obstetrics, and pediatrics. Since we are growing and have more specialized surgeries, procedures, and disease conditions, we are encountering more sick patients. This inspired me to learn more about critical care and bring programs that will help my patients to have better outcomes. I also teach students earning a Bachelor’s Degree in Medicine/Surgery (MBBS) and an MD in anesthesiology.

Ms. Bhawana: I have been working in the adult intensive care unit and surgical intensive care unit of Dhulikhel Hospital as a nurse manager since September 2018. I am basically responsible for the staff, patients, and students in the adult and surgical Intensive care unit. I have also worked as a lecturer in the department of medical surgical nursing since September 2015. I teach critical care nursing and adult nursing.

What do you both hope to learn from your time visiting Mount Sinai and the Institute?

Dr. Malla: I would like to learn about specific procedures used in intensive care, as that is rare and inaccessible to learn in Nepal. For example, I want to observe how slow real replacement therapy is performed in the ICU. Since stronger broad-spectrum antibiotics are often used in the ICU, I want to learn how antibiotic stewardship has been practiced in Mount Sinai. I would also like to develop a rapid response team/critical care outreach, so I would like to observe how it is done in Mount Sinai. In addition, I would like to learn more about overall treatment and how critical care pathways are followed in the ICU. These pathways could be guideline, protocol, or a specific care plan for a specific disease.

Ms. Bhawana: I would like to observe nursing care being provided to the critically ill patients and the use of nursing process. I am interested in the involvement of nurses in the planning, implementation and evaluation of patient care and the involvement of nurses in the doctor’s round. Also in the different protocols being used for patient management; infection prevention policies and protocols; different diagnostic and treatment modalities for patients admitted in ICUs; and simulation regarding critical care procedures for students.

How do you both think you can apply what you learn from the visit to your work in Nepal?

Dr. Malla: The skills, techniques, and approaches that I will observe at Mount Sinai, I shall apply them to my daily practice with the critically ill patients back home. In addition to changes in my own practice, I shall develop protocols and guidelines in my ICU so that my colleagues, students, and nurses will be able to follow a better critical care medicine. Also, I shall develop small critical care training packages for my nurses and residents so that ongoing teaching and learning activities will multiply and propagate the skills I have gained to better care for our critically ill patients.

Ms. Bhawana: I will incorporate the knowledge, skills, and approaches learned there for myself, my staff and student’s practice. We will focus on improving patient care by developing different standards for providing nursing care and on making policies and protocols regarding critical care. As nurses are the most important members in the critical care, their inclusion and visibility can be shown in patient care.

What do you both like about working in Nepal and in medicine?

Dr. Malla: I love my country and my people. This is the place where I can be myself and be happy for the rest of my life. We have the responsibility to make the country worth living. If we don’t do it, who else will? This is my home and I love working to make this home safe and beautiful. Since health and medicine is the basic need of any citizen, I feel proud to be working in this field. Medicine is a noble profession that involves life-saving care. Anesthesiology and critical care is all about acute care and life-saving care, and this is what makes me content.

Ms. Bhawana: Nepal is a beautiful paradise on earth. It has a variety of landscapes, cultures, traditions, and friendly people. The people here have greater health needs because of ignorance, poverty, and lifestyle. The health system is very expensive in Nepal, as most of the health expenditure is out of pocket. So working with and for our own people has always been a matter of pride. We have so many learning opportunities in medicine in Nepal. On my team, all my colleagues are motivated, hardworking, and dedicated to their work. So it has always been my pleasure to work with them.

What is some advice you would give to someone wanting to work in global health and medicine?

Dr. Malla: Every human being deserves optimum quality health care. By working in global health medicine, one can participate in this revolution of improving the health of people globally. One can find tremendous opportunities for research and innovations that involves quality and equity in health care. Working in global health and medicine will definitely keep you proud and gratified.

Ms. Bhawana: Global health facilitates a broader understanding of global health challenges that rise above international borders. So the people who want to work in global health and medicine should not be restricted by society, economic, geopolitical, or security implications. Health care should be affordable and accessible for all.

Ashante R. Patterson is the Communications and Marketing Manager at Arnhold Institute for Global Health and the Department of Global Health and Health System Design at Mount Sinai.

The Evolution of the Peer Navigator Program at Rafiki: An Interview With the First Female Peer Navigator on the Benefits of Expansion

Peer navigators play an integral role in the care provided to adolescents at the AMPATH Rafiki Clinic. The peer navigators at the MTRH-Rafiki Centre for Excellence in Adolescent Health serve more than 800 adolescents who have shared lived experiences, such as living with HIV, experiencing pregnancy during adolescence, and/or being street-connected.

Peer navigators create a sense of community in the clinic, a space without judgment where adolescents can interact and receive care without the burden of stigma. They connect adolescents to appropriate care services, improving engagement in care and subsequent care outcomes.

When the Rafiki Center Peer Navigator program first began in 2016, it consisted of only two peer navigators, one female and one male. Whitney was the first female peer navigator at Rafiki, and Ashley Chory, Senior Program Manager for Global Adolescent Health at the Arnhold Institute. Whitney served as a peer mentor at the Rafiki Center for three years, then transitioned to the role of study peer/peer researcher, working to help engage adolescents in research, especially those who may be harder to reach.

Ashley Chory

In this interview, Whitney discusses the impact that being a peer navigator has had on her life, HIV-related stigma and how it affects the peer navigator role, and the opportunities that working at the Rafiki Center has brought her. Whitney suggests possible improvements for the peer navigator program, such as integrating the program into the clinic more seamlessly, reducing provider stigma, and how to better support peer navigators employed at Rafiki.

What is a Peer Navigator? 

A peer navigator is a young woman or man who helps a young person in care navigate the care system. Every time they have challenges, we are there for them and basically support them through the experience, because we speak the same language. Peer navigators are the bridge between adolescents and the clinic system and school, and with their parents.

Tell me about what a peer navigator does and your role at Rafiki and AMPATH as a young person.

Peer navigators worked at module 4 [the pediatric unit at Moi University Hospital] before the adolescent clinic was open. Module 4 is now a clinic for children from birth to 15 years old, before they are disclosed [made aware of their HIV status]. They transition to Module 4 after testing positive [for HIV] at the mother-child clinic. When I worked at module 4, it served those up to 24 years old (before the Rafiki center). I was one of the first peer mentors for adolescents at AMPATH.

My responsibilities as a peer navigator include giving group health talks to adolescents related to HIV management, facilitating group pre-test HIV education and psychosocial support, co-facilitating support groups, and providing one-on-one peer education to adolescent clients and their partners. I conduct tracing of priority adolescent clients who have not shown up to an appointment, refer adolescent clients to other services within the health facility, and encourage partner involvement in maternal child health and family planning services.

[At the Rafiki Center] the first person an adolescent meets is the peer. We talk about school, home. In the beginning of the program, counseling was not a choice, it was a part of engagement in the clinic. Now, you must have an issue before you join counseling, which is a barrier to receiving mental health care due to stigma and logistical barriers. We must create a safe space and guide the adolescents to counseling, referring them to care while maintaining confidentiality.

How long have you been a peer navigator at Rafiki/AMPATH?

I was a peer mentor for three year, and then transitioned to a study peer. Study peers help reach adolescents who may be interested or eligible to participate in research but may be harder to reach. Study peers follow the participant from care through to enrollment and participation in the study, and they help adolescents feel safe in sharing information.

How has being a peer navigator changed your life?

Being a peer navigator helped me accept myself, and gave me confidence to do things I didn’t think I could do. It also provided me with a platform where I can meet and interact with other peers. I learned a lot about peer mentoring, beyond the program for adolescents. The program helped me transition from peer mentor, to study peer, to the current day where I am going back to school to get a diploma in counseling. Peer mentoring is not the end goal, it is a stepping stone on my career path.

I don’t think I would have had the same opportunities if I wasn’t a peer—I have attended conferences, symposiums, have talked and presented for the county Ministry of Health, and have learned from many leaders in adolescent health. Every day I am motivated that there is more coming, and I will have new ideas and come back and share them.

What motivates you as a peer navigator?

How I am able to talk to an adolescent—I admit them, they look bad, they have no [medication] adherence, and I go through the whole process with them until I see that they are well and healthy and they are talking a lot. I oversee their care from day one of their hospital admission to their discharge, to their care at the clinic and good medication adherence. And then I can rest at night knowing I just changed my patient’s perspective on life.  There are so many adolescents who come in and are doing so badly—I work with them and then they are better.  I am also motivated by how my fellow peers treat me like their role model. They look up to me for advice, and I am always available for them to reach, unlike some nurses and doctors

How did being a peer mentor help you accept yourself?

Before, I didn’t see a role model for young people living with HIV. Peers can help. When I was younger, I did not have anyone who was living with HIV (and was not ashamed of it) for me to look up to. Previously I was too shy to talk about anything, about my story, and peers help normalize this life experience. I am no longer sad or crying, but laughing. It helped me with my self-worth. Now when I look in the mirror, there is nobody that can tell me anything about myself. I get sentimental watching other adolescents go through this.

What opportunities do you see for expansion of the clinic’s services?

The clinic needs more activities beyond clinical care. The way the country is going, adolescents are suffering to get jobs and to fit in. There are youth who have support from their parents, and others who do not. The clinic is a good setting to provide training that helps.

Adolescents sometimes forget what their purpose is in life. Peers can intervene to help adolescents figure out their goals, and use the clinic to push toward their goals. Peers need help transitioning into other things—skill building, and finding other opportunities. They need to be told to go back to school, so that they can be a model for younger adolescents. We should add other classes (they have planting now), to build skills. Adolescents don’t always know what classes are available to them. The classes should be tailored to ensure each and every adolescent belongs to a group and visits the Rafiki center during school breaks so they can learn when they have time.

Peer navigators should be more integrated into the clinic. Providers can be dismissive of peer navigators, which makes it hard to work together, despite the fact that they are all there for the same reason: adolescents. The Rafiki center has providers who are cool—they sometimes wear jeans—you think you are just at home.

There are many peer navigators now, maybe we can have a training where we get all of the peers from the different counties together in Eldoret, once a year. To network, learn from others, dance, etc. People can then go and actualize the ideas in their clinics. “Aging as a peer navigator” is a possible topic for exploration.

What is one thing that you wish people knew about the role of youth peer navigators?

Being a peer navigator does not exclude you from stigma—I am glad I can be a peer navigator because I can correct things that happen in the health care setting that are stigmatizing. We can air out some of the differences and problems that we see, and make it better for the younger kids. As one of the first peer navigators, I did not have an example or mentor for me to look up to. It took a lot of guts and self-talk to do it. Something you need to carry yourself, and do wholeheartedly—it is a calling, it is not a job.

Regarding stigma—We work with nurses, doctors, and outreach workers and sometimes they can be stigmatizing. If you ask a question, they may respond dismissively because of one’s HIV status. They are supposed to help you. They are the same people who tell clients that some employees are living with HIV—outing people, creating confidentiality issues between patients and providers.  Peer navigators still feel the stigma, but you have to talk yourself out of it, because you are someone’s role model.

When peer navigators first began working at the Rafiki center, there was a question about whether they should be paid, or not, stipend or not. Getting a small stipend motivated me to be able to study, support my family. I still think they should provide more financial support. They are not just adolescents here to do this and that.

What is your favorite thing about working as a peer navigator?

Seeing a smile on a parent’s face. There were times when parents came to me to see what was happening with their child. That smile, after you’ve sorted out the adolescents—like checking in on a pregnancy scare, etc.—it is fine, they are all fine. Making the caregiver happy, it gives me happiness.

Looking back at how the peer navigator program has expanded makes me so happy. It used to be much smaller, there were just two of us, but now there are many, for all of the different kinds of needs. It has grown so much and that makes me so happy. I’m happy that the peer navigator program is a success.  And all that we’ve been able to do in such a short time—getting adolescents [virally] suppressed, getting  adolescents who were lost to follow up to come back to clinic, and adolescents joining the many psychosocial groups. My favorite thing is handing over the job and mentoring younger up-and-coming peer navigators at the clinic.

Outside of being a peer navigator what are you doing (such as school/education, working, parenting, looking for work)? 

I transitioned to the research department working as a peer researcher. [Whitney has worked as a peer mentor on several studies, focused on addressing HIV stigma in the classroom, developing educational strategies to combat HIV stigma, assessing the impacts of the pandemic on Youth Living with HIV (YLWH), and examining stakeholder perspectives on reducing stigma in Kenya.] I’ve just received a diploma in psychological counseling. My goal in life is to start a clinic for mental health counseling for young people. I am also a commercial model, and a content creator. And I am an excellent makeup artist.

What are some words that best describe you? 

Down to earth, outgoing, bubbly, jolly.

What do you want the world to know about young people and young people in Kenya?

Young people are special. They need to be understood, and given opportunities, as many as they want. They are in the midst of dealing with puberty, relationships, mental health struggles, and discovering themselves. They need nurturing, support and love from the people around them in order to make them better people. School, home, and clinic should all come together to support adolescents and support their goals. At the clinic, we are trying our best to support them—the school and their parents should do the same.

If you had three wishes, what would they be?

I wish there were no sicknesses in this world. I wish for many more wishes, so that I can cure the world.

Ashley Chory, MPH, is Senior Program Manager, Global Adolescent Health for the Kenya partnership at the Arnhold Institute for Global Health and for the Department of Global Health and Health System Design.

 

 

Ava Boal is an Associate Researcher.

A “Profound Honor”: Mount Sinai Partnership Expands Health Care to Thousands in Guyana

Rachel Vreeman, MD, MS, speaks with Frank Anthony, MD, MPH, Minister of Health, Guyana (right)

The Icahn School of Medicine at Mount Sinai is seizing “an amazing opportunity” in global public health in a three-year initiative that is expanding health care to Guyana’s more than 800,000 citizens. Launched in 2022, the initiative is a partnership among Mount Sinai, the Hess Corporation, and the government of Guyana, and it is already bringing crucial health screenings to roughly half the nation’s eligible children.

“It is a profound honor to serve the people of Guyana in this mission to give everyone the best opportunity for a healthy and long life,” says Jeremy Boal, MD, Chief Clinical Officer of the Mount Sinai Health System, who is overseeing Mount Sinai’s efforts under the initiative.

Guyana is a racially and ethnically diverse nation at the northern edge of South America, with strong historic and cultural ties with nearby Caribbean nations. The nation entered a transformative era in 2015, when nearly 11 billion barrels of crude oil reserves were discovered offshore and its government began making plans to invest in much-needed infrastructure in many areas, including health care. Guyana’s National Healthcare Initiative was launched after John Hess, Chief Executive Officer of Hess and a member of Mount Sinai’s Boards of Trustees, approached Mount Sinai about partnering with Guyana’s government and Hess to expand health care in the country. The collaboration will make health care more accessible even to its most vulnerable citizens, including pregnant people and adults living with diabetes or cancer.

Working closely with Guyana’s government, a 40-member project team of experts from the Mount Sinai Health System are providing thought partnership to the country’s leadership to implement a range of improvements to the national health infrastructure of Guyana. These teams are led by the Mount Sinai’s Arnhold Institute of Global Health and Mount Sinai International, organizations dedicated to advancing Mount Sinai’s mission of delivering innovative, high-quality health care around the globe.

Initial steps: Increasing access to children’s health care, primary care for diabetics, and a “world class” pathology lab

Already underway is a national child and youth health initiative, the first primary care program for children in Guyana. Launched in August 2023, the program provides comprehensive health exams for all nursery school students in Guyana, children aged three to five years old. Within its first month the program conducted health screenings—including vision, hearing, and dental evaluation—on 50 percent of the eligible children in Guyana, and the program is now reaching every region of the country, including remote regions accessible only by boat or plane.

“We’re really proud to move this bold children’s health initiative forward with the Guyana Ministry of Health and Ministry of Education,” says Rachel Vreeman, MD, MS, Director of the Arnhold Institute for Global Health, which is guiding the program. “It provides the critical steps toward implementing a primary care system and more universal health coverage. We’re providing screenings that let us identify children’s health issues early and connect families and communities and schools with the health centers in a new way.”

Comprehensive school health screening in the indigenous community of Karasabai in Region 9, Guyana

The next step is to enhance the national primary care program for adults, which will initially focus on diabetes screenings. After developing new national guidelines on diabetes in partnership with Guyana’s Ministry of Health, Mount Sinai experts trained Guyanese health professionals to implement high quality screening and care for diabetes at every level of the health system. Under the program, which also supplies medication and equipment, the Guyanese providers will, in turn, travel across the country to train health professionals in their local communities.

“The diabetes care platform is a model for other ‘train the trainer’ programs and primary care efforts, which will expand to provide screening and care for health challenges across Guyana, including high blood pressure, cancer screening, mental health screening, and other chronic diseases,” Dr. Vreeman says. The diabetes training is accompanied by efforts to build an infrastructure of expertise, supplies, and referral pathways, explains Dr. Vreeman, noting that expanding primary care services throughout the country will prevent patients from having to travel long distances for care. The Arnhold Institute is also guiding the country in building a more robust health care workforce, as well as the eventual rollout of a national electronic health records system and national health information system strategy.

The health care initiative will also expand specialty and tertiary health care at both public and private health care facilities throughout the country, particularly in cancer and cardiovascular care. Under the partnership, Mount Sinai International is working with Guyana’s government to develop a strategic plan that will determine how and where these services will be implemented, and how they will be funded and staffed. While most of these services are still in the planning stages, a telepathology lab is expected to be in operation by January 2024. Using advanced remote technology, the lab will allow doctors in Georgetown, the nation’s capital, to work with Mount Sinai pathologists in New York to diagnose patients in Guyana.

“The technology will decrease the wait time in Guyana for high-quality pathology readings from two to three months to few days,” says Szabi Dorotovics, MD, MBA, President, Mount Sinai International, who is overseeing these efforts. “I don’t think I have to tell you how much of a difference that can make, especially in cancer care. The quality of the readings will be world class.”

Guiding quality improvements at Guyana’s largest hospital

Under the initiative, Mount Sinai is also consulting on quality and operational improvements with leaders from Georgetown Public Hospital Corporation in Georgetown, Guyana’s largest hospital, where roughly half of patients are women seeking maternity care. These include enhancements to its neonatal intensive care unit; accident and emergency services; fire and life safety procedures; information technology; pharmacy services; supplies, equipment, and technology; minor renovations to the hospital campus, and more. A major challenge faced by hospital leaders in rolling out these improvements is a lack of resources, including a shortage of nurses and equipment.

“What we have to do is work with them, given the constraints, and figure out what can we do,” says Art Gianelli, MBA, MPH, FACHE, Chief Transformation Officer for the Mount Sinai Health System, who is leading these efforts with the Mount Sinai International Group. “Maybe we can’t do what is ideal, but we can take practical steps to improve all of the areas.”

Most of these improvements involve process changes that make up the foundation of good care, explains Mr. Gianelli, some of which are already underway. “The next step is to build on this foundational work and start to drive changes in outcomes, but you have to start at the beginning.”

Hospital leaders have already made a number of quality improvements, such as installing soap dispensers throughout the building to help reduce the spread of hospital-acquired infections, and deploying hospital administrator “safety huddles” to improve awareness of potential safety issues. For Guyana’s largest and busiest hospital, where many patients travel long distances to obtain care, these changes are sure to have a positive “ripple effect” across the country, Mr. Gianelli says.

While Guyana’s health care initiative is still in its early phases, it is providing valuable insight into how to target, at a national level, social determinants of disease. This will allow the country to address problems early and provide community-based prevention strategies, according to Dr. Vreeman.

“Our teams feel really privileged to be serving as this partner for Guyana’s Ministry of Health,” says Dr. Vreeman, Chair of Global Health and Health System Design at the Icahn School of Medicine at Mount Sinai. “It’s an amazing opportunity to be able to bring up to scale some of the most evidence-based practices for what works in global settings. Through this initiative, Guyana is improving access to care, especially for marginalized and vulnerable children, and for people living in remote communities who have often experienced systemic inequities.”

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