Tina Aswani Omprakash
When Crohn’s disease forced Tina Aswani Omprakash to leave a career on Wall Street, she began looking for a way to rebuild her life. Having navigated the surgeries, the health disparities, and the South Asian cultural stigmas—shame and taboo—associated with inflammatory bowel disease (IBD) for more than a decade, Ms. Aswani Omprakash knew she had insights on IBD that could be beneficial for people of color facing the same challenges.
That revelation led her to the Master of Public Health (MPH) degree program at the Graduate School of Biomedical Sciences at the Icahn School of Medicine at Mount Sinai.
“I chose the program in part because I had heard Mount Sinai was accommodating of students with disabilities, and that was important to me in rebuilding my career and self-worth,” she explains.
“I gained a knowledge base that expanded my understanding of the disease and gave me insights to approach public health not just from my own personal experience, but from a broader health care perspective.”
A long-time patient advocate and public speaker who has presented at many domestic and international gastroenterology conferences, Ms. Aswani Omprakash is pursuing the General Public Health track to better understand the needs of different patient populations and develop her research skills. In 2020, she conducted a qualitative study, sponsored by the biotechnology company Genentech, on the unmet needs among diverse patients living with IBD. Her abstract was published in Inflammatory Bowel Diseases and presented at the 2021 Crohn’s and Colitis Congress.
“This was a groundbreaking study in that it was the first patient advocate-led study in the IBD space. I hand-picked and recruited patients of various races, ethnicities, genders, age groups, sexual orientations, and geographical locations via my social media presence,” Ms. Aswani Omprakash says. “Although the conclusions we came to were expected, the study helped to legitimize the needs and concerns of patients—such as more access to mental health care, improved access to specialists who understand the complexities of the disease, and better medications that target the disease in different communities.”
For her MPH Applied Practice Experience, Ms. Aswani Omprakash worked with the Leona M. and Harry B. Helmsley Charitable Trust on two projects: a guidebook for caregivers of children and adolescents with Crohn’s disease, created with the National Alliance of Caregiving, and a series of web pages detailing surgical treatment options, which she developed with the United Ostomy Associations of America. “These resources are designed to fill an information gap among health care providers and patients living with IBD, and to change perceptions of surgery as a last resort,” Ms. Aswani Omprakash says. “The fact that they are written by a patient who is earning an MPH further enhances the content.”
Nils Hennig, MD, PhD, MPH, Director of Mount Sinai’s Graduate Program in Public Health says: “Tina Aswani Omprakash is a great example of our patient-focused approach to public health. Proximity to the populations we serve is fundamental. The study of Public Health at Mount Sinai goes beyond mere analysis and repair: it offers choices, it provides a human touch, and it may ultimately help reestablish human dignity.”
Ms. Aswani Omprakash has been completing the program one course at a time and will graduate in December 2022. “This has been an incredible experience,” she says. “I gained a knowledge base that expanded my understanding of the disease and gave me insights to approach public health not just from my own personal experience, but from a broader health care perspective.”
To learn more about Ms. Aswani Omprakash’s patient advocacy journey, go to her blog at ownyourcrohns.com.