Building Physician Skills and Competencies in the Care of People with Disabilities

Eliana Cardozo, DO, Assistant Professor of Rehabilitation and Human Performance, with a patient. Photo taken before the pandemic.

While it is important for physicians to skillfully and compassionately care for patients, specific competencies may improve the experience for patients with disabilities, said Jenny Lieberman, PhD, Senior Occupational Therapy Rehabilitation Specialist at the Department of Rehabilitation, Medicine, and Human Performance, who was the featured speaker for a virtual talk hosted by the Office for Diversity and Inclusion (ODI) at Mount Sinai. The session, “Building Physician Skills and Competencies in the Care of People with Disabilities,” may be viewed here.

The talk was part of the third annual Raising Disability Awareness Virtual Talk Series, launched by ODI for Disability Awareness Month. The series featured speakers from the Mount Sinai Health System and the community to raise awareness and promote an inclusive and equitable workplace and health care environment for people with disabilities.

Patients with disabilities may face a wide range of neurological, orthopedic, or medical challenges, said Dr. Lieberman, who is an occupational therapist, researcher, and educator. “There are a varying range of diagnoses,” she said. “But many times the presentation will be similar when it comes to their disability. The worst thing that we could possibly do to any patient that comes through our doors is to make them feel invisible. This is their life. This is what they’re living on the day to day. So it’s really important to recognize them so they feel they are heard, and not invisible.”

Jenny Lieberman, PhD, Senior Occupational Therapy Rehabilitation Specialist.

The first key is knowledge, Dr. Lieberman said. Having awareness of specific secondary diagnoses that develop is key to providing good care—for example, knowing that a person with a spinal injury also could develop urinary tract infections, skin irritation, or autonomic dysreflexia, a sudden increase in heart rate blood pressure. Assessments and evaluations often differ for people with disabilities during medical appointments. For example, only 5 percent of people who use wheelchairs are weighed during their visits, which affects proper dosage of medication and management of their health, Dr. Lieberman said. The solution may be using a lift or an assessment table with a scale. Even if you cannot weigh them during the visit, you can validate their concerns by acknowledging your awareness that this is a problem that needs a solution.

Tasks like weighing patients, conducting secondary diagnoses, and administering medication might require different equipment and accommodations. Dr. Lieberman recommends to “be aware if someone is coming to you with a disability,” she said “The support services, access, and requirements should be in place beforehand to ensure that they get the treatment they need.”

People with disabilities often feel invisible or viewed as incompetent during their health care experiences. They also do not receive adequate information about treatments and interventions, often have access limitations, have to advocate for themselves, and may have trouble getting the financial or insurance support they need. Dr. Lieberman said clinicians can address these important issues if they are culturally competent and understand this population’s experiences.

Dr. Lieberman also discussed ways clinicians can ensure that patients with disabilities are heard: “Do a thorough chart review before you see the patient. Introduce yourself. Acknowledge their history, ask them if they’re still experienced the symptoms they were previously experiencing, and validate their concerns and symptoms,” she said. “While all of this seems very obvious to do, it doesn’t translate to our patients. They often don’t realize that we have looked into their chart and we actually have some backstory on them.”

In the end, Dr. Lieberman suggested that physicians and other providers always be empathetic and patient. They should create an environment that makes everyone feel safe and comfortable and speak to a person with a disability in language they are able understand so they can actively participate in their care plan.

New Yorkers With Disabilities Face Added Challenges During the Pandemic and Beyond

Angie, a then 34-year-old Spanish-speaking patient with Down syndrome admitted with acute COVID-19, received personalized care, language services, and in-person visits from her loved ones that contributed to her recovery.

Through the COVID-19 pandemic, New Yorkers with disabilities have faced challenges and inequities in several areas, including employment, vaccines, and housing. Representatives from the Mayor’s Office for People with Disabilities (MOPD) discussed these issues in a virtual talk hosted by the Office for Diversity and Inclusion (ODI) at Mount Sinai. The session, “The Aftermath of COVID-19 in New York City,” can be viewed here.

The talk was part of the Raising Disability Awareness Virtual Talk Series, launched by ODI in 2020 for Disability Awareness Month in October, which featured speakers from around the Mount Sinai Health System and the community to raise awareness and promote an inclusive and equitable workplace and health care environment for people with disabilities.

Panelist Eliezer Ramos, a Business Engagement Associate for the NYC: ATWORK Employment Initiative at MOPD, addressed the importance of increasing resources to the population after the COVID-19 pandemic. “Our goal is to make New York City the most accessible city in the world,” he said. According to Mr. Ramos, “People with disabilities are more than twice as likely to live in poverty. Unemployment rates for New Yorkers with disabilities increased more quickly during COVID-19. And they’ve remained the highest they’ve ever been.”

MOPD aims to improve the quality of life for New Yorkers with disabilities, focusing on transportation, employment, financial empowerment, education, technology, housing, health, and access. The hope is that MOPD can expand services in all areas to improve the day-to-day experiences of people with disabilities, Mr. Ramos said. Working with the city and its partners to improve transportation, enhance recruitment for internships and job opportunities, and bridge the digital divide are a few ways MOPD is working for people with disabilities. A report on the city’s current and planned initiatives for people with disabilities is at AccessibleNYC , Mr. Ramos said.

Job Training and the Digital Divide

MOPD uses a hands-on approach to train organizations, such as schools and educational systems, on disability etiquette and awareness. “The more we can do to educate our city, the better,” Mr. Ramos said. Using digital accessibility resources, student groups, and training, the MOPD works to help students reach their goals and inform the educators.

Crystal Rivera, Program Officer for Empowered Cities at MOPD, described how challenging it was connecting people with disabilities with job opportunities. “We had realized a lot of our job seekers were working on job applications and submitting resumes through their mobile phones, because they did not have access to technology,” she said.

Because many job seekers have poor Internet access, and limited use of computers, they had difficulty attending Zoom meetings—which during the pandemic have become an integral part of the working world. “They heavily relied on their cell phone for computer tasks,” Ms. Rivera said. “And many of those who do have computers, lack digital literacy training.” These are some of the disparities that are addressed by Empowered Cities, an initiative to advance equity and economic opportunity for low-income people with disabilities and their families.

A lack of safe and affordable housing is another issue that has disproportionately affected people with disabilities in New York City. Arthur Jacobs, Housing Coordinator at the MOPD, described the steps the office is taking.

Housing and Health

“We continue to develop new accessible units through the set-aside program in the affordable housing lotteries. And that breaks down to a 5 percent set aside for people with mobility disabilities, and a 2 percent set aside for people with vision and or hearing disabilities.”  Mr. Jacobs said. New Yorkers who meet requirements can apply for affordable housing through the city’s Housing Connect site.

Mr. Jacobs also shared some insight on how New Yorkers with disabilities can get assistance with post-pandemic housing. “New York City continues to develop new accessible units through the set-aside program in the affordable housing lottery,” Mr. Jacobs said. “It is a great way to ensure that people with disabilities have a space that they can afford and fit their needs.”

Panelists said that like many populations throughout the country, people with disabilities have been affected by misinformation about the COVID-19 vaccine.  “We do hear a lot of fear. There’s a lot of misinformation being passed around, a lot of hesitancy from people that have multiple conditions,” Ms. Rivera said, adding that they may have heard false information that vaccines will worsen their condition or give them COVID-19.

The Language Services team at the Mount Sinai Health System provides language translation and interpretation services to support patients with disabilities and those with limited English proficiency.  Assistance includes interpretation services in different modalities for inpatient and outpatient care as well as critical communication with patient’s family members. In response to COVID-19 protocols in place, the team developed patient-facing tools, deployed video interpreting equipment and assistive technology to pro-actively meet the needs of patients and families. To learn more about the services offered, please visit the Language Services webpage.

Additional disabilities-related resources are available on the Mount Sinai Office for Diversity and Inclusion site.

Fourth Clinical Climate Change Conference at Mount Sinai Addresses the Health Effects of the Climate Crisis and Improving Patient Care


The Fourth Clinical Climate Change Conference, held virtually on January 7, 2022, provided a path forward for the health care community to address the health effects of the climate crisis and improve patient care through state-of-the-science research and practical, evidence-based tools. This annual continuing medical education conference at the Icahn School of Medicine at Mount Sinai was attended by more than 250 physicians, medical students, researchers, and allied community leaders from across the United States.

Assistant Secretary for Health Admiral Rachel Levine, MD, highlighted in her keynote address the importance of focusing on equity in climate and health policy as communities of color suffer disproportionately and are more likely to face other crises, such as poverty.

Vulnerable groups that experience poverty and lack access to health-promoting community infrastructure, housing, and clinical care are often also at a heightened risk of climate-related exposures such as increased temperature, air pollution, and extreme weather events. Dr. Levine emphasized the critical role the health care community must play in addressing social determinants of health through partnership with stakeholders outside of medicine, particularly in areas such as housing, food access, environmental protection, environmental justice, employment and economic opportunity, and transportation.

“Health equity is central to our discussions of climate change, and climate change is not the first threat that these communities have to face. It is one of many,” said Dr. Levine, who completed her residency in pediatrics and adolescent medicine at Mount Sinai and stayed on as a faculty member from 1988 to 1993. “There are other crises that people face, including poverty, that we need to understand as clinicians to provide the best care possible to individuals. We need to explore new ways to understand and to address the social determinants of health if we are going to have meaningful progress.”

She added, “While everyone will have some form of mental health response to climate change, there are populations that are uniquely vulnerable…We need to take a health equity lens to this. For some communities, climate change is not a concern of the future…It’s a concern of today.”

J. Marshall Shepherd, PhD, an international expert on climate and health at the University of Georgia, noted that citizens must move beyond the perspective that climate change is a future concern. Extreme weather is happening now and will continue to increase in frequency and scale.

Robert Wright, MD, MPH, co-director of the Mount Sinai Institute for Exposomic Research, the convening organization, emphasized that climate change affects virtually all aspects of the environment, which in turn affects health. Because of this complexity, understanding the impact of climate on health requires measuring the environment on a grand scale repeatedly over time, he said.

Age, poverty, where you live, and pre-existing health conditions compound the impacts of climate-related environmental exposures. With sophisticated new technologies, we are now able to collect rich exposure data on diverse parameters of our environment, such as air pollution, weather, and temperature in geospatial time, according to Dr. Wright, who is Ethel H. Wise Chair of the Department of Environmental Medicine and Public Health.

This year’s conference theme focused on mental health, and a major takeaway was that clinicians must prioritize their own well-being to be effective. It is well documented that clinicians are experiencing increased stress due to both the climate crisis and job-related pressures, leading to increased burnout and exodus from clinical care.

“Clinicians are also personally impacted by climate change. We also can feel anxious about the future, feel anger, frustration about the world and what future generations are inheriting from us. We must develop our own resiliency, our own practices, to notice how climate change impacts our own mental well-being and seek assistance as needed,” said Dr. Levine. “We need to consider the pressures that climate change can also put on our provider community. This is of concern of myself and the Surgeon General. We need to think of the supports that clinicians need to continue to provide care during the climate crisis.”

‘Eco-anxiety,’ a term used to describe climate-related stress, coupled with the ongoing stressors of the pandemic and social inequities, must be recognized and managed to protect the health of both providers and patients, experts say.

Young people are also affected by eco-anxiety, and they identify the future of the planet’s health as a key concern.  A recent survey of thousands of teenagers and young adults in 10 countries found that more than half were extremely or very worried about climate change and felt sad, anxious, angry, or powerless. That highlights the need for increased supports to improve resiliency and coping in young people, who are often at the forefront of climate change advocacy.

Health providers can take action in both their professional and personal lives by being environmentally conscious and connecting with others to build community to affect positive change. As trusted messengers, they are well positioned to educate patients on the health consequences of climate change and to advocate for solutions that protect and promote the health of all people.

The 2022 conference was organized by the Mount Sinai Institute for Exposomic Research.  Conference supporters included the American Lung Association, the American Public Health Association, the New England Journal of Medicine, the Center for Earth Ethics at the Union Theological Seminary, Columbia’s Global Consortium on Climate in Health Education, the Yale Program on Health Care Environmental Sustainability, the Center for Health Equity, Education and Advocacy at the Cambridge Health Alliance and the Medical Society Consortium on Climate and Health.

Watch the conference videos.

Women With Disabilities Experience Barriers to Access and Disparities in Health Care

Arianny Ramirez, right, a Clinical Research Coordinator in the Spinal Cord Injury Program at The Mount Sinai Hospital, demonstrates patient care in a staff training video with physical therapist Alexandra McGivern.

Intersectionality is a crucial consideration as providers treat patients and understand their needs inside and outside health care facilities, said Arianny Ramirez, a Clinical Research Coordinator in the Spinal Cord Injury Program at The Mount Sinai Hospital, who was the featured speaker for a virtual talk hosted by the Office for Diversity and Inclusion (ODI) at Mount Sinai. The session, “Health Care Disparities and Women with Disabilities,” is available here.

The talk was part of the Raising Disability Awareness Virtual Talk Series, launched by ODI in 2020 for Disability Awareness Month, featured speakers from around the Mount Sinai Health System and the community to promote an inclusive and equitable workplace and health care environment for people with disabilities.

Arianny Ramirez

Ms. Ramirez, a woman of color with a physical disability, discussed health care challenges at both a personal level and a population level. She said the health care community must work together to understand the intersection of sexism, racism, and ableism, and its effect on women with disabilities. “The biggest obstacles I face in my life as a woman with a disability are the barriers and limits society places on me,” she said.

After an accidental fall that paralyzed her from the waist down at age 18, Mrs. Ramirez realized that her life and the lives of many others would be easier if the world were designed with disabilities in mind.

According to the Centers for Disease Control and Prevention, about 36 million women in the United States have disabilities. This number is expected to continue growing, says Mrs. Ramirez, and “women with disabilities face more difficulty than women without disabilities in accessing health care screenings.” Routine physical exams, mammogram, Pap smears, sexually transmitted infection (STI) testing, and eye exams are just a few of the screenings that are more challenging to access for women with disabilities.

Physical and attitudinal barriers often prevent this population from seeking and receiving equitable and appropriate health care. The necessary equipment, machinery, and devices to care for these women are not always present in doctors’ offices, Mrs. Ramirez said of clinical care in the United States.

Additionally, stereotypes and discrimination are often directed toward people with disabilities in health care settings, making them feel uncomfortable and excluded, and there are limited training and guidelines in place to address the specific needs of women with disabilities.

“Let’s start with our physical barriers,” Mrs. Ramirez said. “They consist of a lack of adaptive examination tables and scales, inaccessible testing rooms, and inaccessible diagnostic equipment. Over 90 percent of physicians’ offices do not have wheelchair-accessible scales.”

The Mount Sinai Health System is working to address these disparities with a variety of measures, including a course created by the Department of Rehabilitation and Human Performance for Mount Sinai physicians and other providers in fields such as family medicine, internal medicine, obstetrics and gynecology, and emergency medicine. Mount Sinai employees can register for the course, “Improving Health Care Access for Women with Spinal Cord Injury” on Mount Sinai’s PEAK site.

Mount Sinai’s Spinal Cord Injury Research Center also offers information to the public about support groups, exercise, and clinical trials, including one addressing access for women with spinal cord injuries.

Ultimately, Mrs. Ramirez called for the public to consider the world from a different perspective.

“I invite all of you to just look around your environment. Whether it’s in the office, the structure that you live in, you work in, or your commute, and think ‘what if I did have a disability? What if I did have knee surgery and there wasn’t a lip in the sidewalk that I couldn’t get over or something?’” she said. “Be mindful of the experiences other people are having and remember that a disability can happen to anyone. One can become disabled at any point in your life, and you can be a part of this community in the future as well. If you do your part and advocate for structural change, this can improve the environment around us and open the door for women with disabilities to get the care they need and live their lives.”

Speaking as a woman with a disability and a professional in rehabilitation, Ms. Ramirez called on  the health care community to take four measures: Increase professional education, training, and technical assistance so providers understand disability cultural competency; implement new monitoring and accountability laws and practices to increase oversight; use accreditations to ensure health care facilities comply with accessibility guidelines; and create a universal design that can be applied to any facility to care for and welcome people with disabilities uniformly.

“Until ableism becomes a conscious thought in nondisabled people’s minds, only then will true equality be achieved,” she said.

Mount Sinai West Earns National Accolades for Obstetrical Care

Mount Sinai West earned a High Performing rating, the highest rating available, from U.S. News & World Report in the publication’s inaugural assessment of hospitals that provide obstetrical care. Mount Sinai West, along with Mount Sinai Morningside, which are ranked together, are among 237 of 2,700 hospitals in the United States to receive this rating.

To achieve the High Performing rating for maternity care, hospitals had to excel on multiple metrics that are important to families, including complication rates, C-section rates, whether births were scheduled too early in pregnancy, and breast feeding support for new parents.

Mount Sinai West has a culture that prioritizes low-intervention births and shared decision-making between providers and their pregnant patients and has a longstanding tradition of using midwives. Examples of how the hospital puts this into practice include offering nitrous oxide as an alternative pain-control measure to an epidural and wireless monitoring that enables patients to walk around during labor rather than having to stay in bed.

The labor and delivery unit’s providers are also trained in TeamSTEPPS, a teamwork model developed by the U.S. Department of Defense and the Agency for Healthcare Research and Quality, to optimize patient outcomes by improving communication among providers.

“We are proud to be included in the inaugural edition of Best Hospitals for Maternity Care,” says Holly Loudon, MD, MPH, Site Chair, Obstetrics, Gynecology and Reproductive Medicine, Mount Sinai West.  “To be recognized on a national level is a tribute to our outstanding team of obstetrical faculty, nursing staff, and support staff and their dedication to quality, safety, and patient experience.”

HOLA Volunteers at Community Soup Kitchen

HOLA volunteers, from left to right: Awanda Canelo, Frank Pabon, Shawn Lee, and Kelley Gonzalez.  Photo credit: Angel Marquez

Members of HOLA, the Heritage of LatinX Alliance Employee Resource Group at Mount Sinai Health System, recently partnered with The Father’s Heart Ministries by volunteering at the organization’s soup kitchen and food pantry.

“It was very sad at first seeing the long line of people in the rain two hours before the pantry opened,” said Frank Pabon, Director of Operations/CBO at The Mount Sinai Hospital, who, along with Paul Sanabria, Project Manager, Quality Operations, and Awanda Canelo, a billing coordinator, helped to organize the volunteers. “However, it was so rewarding assisting with the food distribution and knowing that we helped families put food on the table.”

He added, “We were glad that we could help serve so many people. This experience made us especially thankful during the holiday season.”

The Father Heart Ministries offers a variety of programs, such as the soup kitchen and food pantry, tutoring, and job training programs. On the day the HOLA members volunteered, December 9, the food pantry served about 900 people.

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